Category Spinal Cord Injury

Life of “WHEELCHAIR BOUND” and “CONFINED TO A WHEELCHAIR”

Bond, ropes, captivity, the impossibility of movement and similar association are exactly what most people think when they hear the words “confined to” and “bound”. It is not wrong. Does then it make any sense to say that someone is “confined to a wheelchair” or “wheelchair bound”? No,it is absolutely pointless! As it’s absurd to say that someone is bound/confined to shoes, clothes, house or any other thing that is used in daily life, it is equally absurd to say it for the thing that’s used for mobility. Maybe it’ll amaze you, but the wheelchairs are not designed to make someone captive, opposite, wheelchairs offers a possibility for people to (really)live a life.

STOPPRESENTINGME ASWHEELCHAIR-BOUNDANDCONFINED

 

Why do people so often use the terms “confined to a wheelchair” and “wheelchair bound”?

For six years, since I have been a wheelchair user, almost every article that has been published about me, as any story published in other media contained

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KAYAK DOESN’T CARE IF YOU USE A WHEELCHAIR

When you experience a spinal cord injury, you constantly hear about what you will not be able to do anymore, and everything you have to give up on. According to that, as a wheelchair user diagnosed with quadriplegia, just a thought of paddling and kayaking would have to be completely insane. What reality is, that no one can know whether you can or can’t do something. You know best yourself, and regardless of the difficulties you’re experiencing, you are the one who has to fight for yourself and your dreams.

I always liked trying new things, and after the injury, when it became ten times harder to me to do anything, my adventurous spirit increased tenfold. I’ve never had experience in kayaking, so, I couldn’t even assume how my body would behave in a kayak, will I be able to sit in it and will I have the strength to paddle, but I knew that I will try.

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Spinal Cord Injury can happen to you too!

We alone choose what our view will be on the world and what is happening to us. We can observe it in a black and white sense but we can always make it a little better, no matter how “black” it may appear. A spinal cord injury is definitely the worst thing that has happened to me in my life and is something that I would never wish upon anyone. On the other hand that is something that happens and unfortunately will continue to happen. When you first don’t know if you will even stay alive and then eventually getting a prognosis from somebody who should know what they are doing saying that you have a 1% chance of ever moving any part of your body, it all looks pretty “black.” Life changes entirely, but then again, you stayed alive.

izaberi da zivis - povreda kicmene mozdine

In a situation like that everyone asks themselves why that happened. Why me?!? There is no answer to that question. Sometimes it is a result of our actions, sometimes other’s actions, but when everything is added and subtracted all that is left is that it happened. Life goes on, we choose how we will continue it. Or at least, we should be the ones who are choosing.

It is clear that it is neither fun nor easy to go through that first period after the injury, but there are always more things that make these situations more difficult. To be more precise, not “things,” but people. First, the doctors and the entire medical staff, that without any hesitation, lets you know that you will never again be able to walk, that you will spend the rest of your life confined to a bed, and that you will never be able to do anything on your own again. And then there are your friends, relatives, acquaintances, and even closest family who feel bad for you, for what happened to you and of course your for life, for which they see no future.

As somebody who did not know absolutely anything about spinal cord injury before it happend to me, I did not even know how life after the injury is. I thought that what the doctors were saying was the most accurate truth that I could hear. And to be frank, it is impossible to stay immune to the actions, tears, and complaints of the people closest to me. At that point, with the health complications that I had, I fought the hardest battle. I battled my own self.

 Be Strong, Be Stronger, Be the Strongest!

-“Poor girl, how will she continue to live!?”

-“It’s sad that her life ended when she was so young!”

-“God forbid that parents live to see their child become incompetent.”

These are just some of the phrases that I listened to on a daily basis. And, because of this, I always wondered how much of a burden I will be to my parents and what will be the purpose of my life when I cant do anything alone. One cannot count how many bad thoughts and questions were in my head, but I wanted to continue my life and show others that I am still me. The struggle between accepting what others were saying to me and what I wanted still lasted.

An important, if not the most important moment in all this was a visit from a girl who had suffered a spinal cord injury earlier. Her smile (she had all the time), the way she talked to me and answered all the questions I asked her circled the thickest possible line of my decision to continue my life in spite of everything and the way that I want. MILICA THANK YOU!

After the hospital, I battled a new fight with myself. This time it was the struggle for accessibility that was almost nonexistent in my environment, the pitiful looks of 99% of the people who passed by me and their even more pitiful, and frequently nonsensical, comments, and getting used to the completely different way of functioning. I admit, I did not know how difficult it would really be to achieve the goal I had set, but I do not regret a single moment.

My view on the world and life had completely changed. Those who should have and were there for me continued to support me in everything. Many were not, but there is no purpose in writing about them. I met, I do not even know how many, beautiful and above all, positive people who complement my life in all aspects. There is no reason for anyone to look at me in a different way other than a person who has values, virtues, and faults as well as anyone else. Using a wheelchair does not make you stop being a person.

As in all things, if you experience something you can realize what something is really like, but with this I do not mean that every man should be hurt, on the contrary, it is enough to listen to someone who is in such a situation, to do a little reading about it, sit down in their wheelchair (they will not bite) and feel just a fraction of what it’s like to live that way. Life after a spinal cord injury is not easy, but it is very much possible. People who suffer from these injuries fight in every way, and as long as they are capable they seek to return to their activities, continue to study, work, do sports, establishing a family, and everything every person wants, to live their life.

Living Life is not a Special Need

Journalists, government representatives, citizens, people of different professions and ages, and even in many cases people who have a disabilities themselves call people with special needs. Life isn’t a special need. For various reasons, different people perform daily activities differently such as cooking, taking children to school, taking exams, taking care of hygiene and health, going to the store, etc.. I do not see a single special need in any of these. Feel free to correct me if I’m wrong.

Nobody knows what life will bring us tomorrow, but if for any reason you think that spinal cord injury can’t happen to you or someone dear to you, I have to be honest, you are mistaken.

Backbone injuries are one of the worst injuries because they often monitored even after spinal cord injury. There are different causes of these injuries, but are usually caused by traffic accidents, then jumps into water, falls, violence, sports accidents and other causes.

izaberidazivis povredakicmenemozdine

When it comes to spinal cord injury, the first and the only problem that people see, if they had not encountered it before, is the inability to walk. The truth is that there is no one problem. It’s a collection of smaller and larger problems that vary from person to person, or from injury to injury. Only some of them have very low blood pressure, infection, neuropathic pain, and loss of sensation, etc… A very extensive article can be read about this in on Wikipedia.

Do not wait until something happens to change some things in your life, and therefore in the lives of others. Acceptance of a person as a person is a big step, and certainly the most important thing to improve many others.

Be an example of understanding, support and above all humanity.

Would you really want someone else’s tomorrow to be unnecessarily more difficult?

 

 

 

 

 

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